Author Archives: sisofrida

Report on Disabled Women’s Right to Occupy

Video

putney2
Putney Debate
Feminism, Disability and Activism

It was a brilliant night – thank you all for coming – Becky Olaniyi,Ruth Bashall, Michelle Daley, Janet Price, Lani Parker and others.

Michelle, Eleanor, Ruth and Becky

Michelle, Eleanor, Ruth and Becky

Michelle speaking

Michelle speaking

people in discussion in a group

some great discussions on that night

this is the link to the video

Feminism, Disability and Activism

 

Transcript

Video 1

 

Julie:

Welcome everybody to the Putney Debate. First a few things about housekeeping. The disabled toilet is down there at the end of the corridor and there are other toilets upstairs. We are going to be live streaming and recording for prosperity all the debates so when it comes to questions and comments, I will hand around a mic. If you come up just please be aware that you need to speak clearly and use the microphone. So, welcome everybody and I’ll hand over to Eleanor.

Video 2

Eleanor:

Thank you Julie. Let me explain a bit about the live streaming. Anybody who is online can be watching this and maybe contribute as well Inka? I’ve seen that.

Inka: Would you like that?

Eleanor:

I don’t know if anyone is watching. If anyone can put it on Twitter, I’ve put it on Facebook but I don’t know if it’s on Twitter or not. So, that would be great.

First of all I have to thank Occupy London for suggesting that we did this. At first I thought what have we got to do with Occupy London but then we thought this is a really good platform to do something that has never been discussed before. And we came up with the title last Friday afternoon over cake and that is why I think everything was done in a bit of a rush and anybody who works with disabled people knows that when you try and organise anything you have to give a long time and so I apologise to Pauline and all the deaf friends who came. We tried so many interpreters and we just didn’t manage. Well, we did manage to get one and we thought hallelujah but something personal happened and she couldn’t stay.

Anyway, let me tell you something about Sisters of Frida which is the host I think you call it with Occupy London for this meeting. If you don’t know yet, the title of this meeting is Disabled Women’s Right to Occupy. When we were discussing this, Ruth and I, we thought that instead of having a panel of us talking and then questions and answers, we would do it in a form of interview and other people could interject and join in the conversation. Also, we did it this way because this is entirely new and we have not done this before. This is not just disabled people or Occupy London or other people or groups. This is a whole mixture so we will see what comes out of this little melting pot. I should start with a little bit about Sisters of Frida. I always forget to introduce and do the proper introductions.

Sisters of Frida was started about 2 years ago. We sat in a lobby in a hotel as we didn’t have anywhere else to go and it seemed the right thing to do to have it over a cup of tea. There were 9 or 10 of us and we thought it was a really good idea. One of the people who was there was Martine Newel who was gutted that she can’t come but she has a really bad cold and instead of sharing it with everyone here she thought she would just watch it on the live stream and share her thoughts later. Another one has gone off to Liverpool and others are in the rest of England and so cannot come and that’s why we are really grateful to Occupy London and Inka for live streaming so that they can also join us.

Anyway, why Sisters of Frida? We are called Sisters of Frida and took a long time to decide that name because we didn’t want it to be specifically labelled in a jam jar sort of thing, you know? We decided that our role model should be Frida Khalo because she was an artist and her creativity was born out of her impairment and her disability but she was also a very feisty women, was bisexual, she was an activist, she was a lover, she was a real lover of life. So anyway, that’s how it all started. You can read it all on our website about what we do.

We are trying to focus on a few things and we are still coming up with what we are going to be and what we are going to do in the future but violence against women, the sort of gaps that disabled peoples organisations have not touched on. The sort of things that feminism in general have not touched on. Disabled women and feminism.

Video 3

Eleanor:

Let me start by introducing Becky who I met last week at Feminism in London and I had this thought and said that she would be a brilliant person to start the conversation this evening. I will do a bit of introduction. Becky’s 18, she is doing her A Levels, she’s amazing. She does swimming, tennis and reading and is studying English Literature, Psychology and Sociology and hoped to study psychology at university. She’s Nigerian, born in America and has used a wheelchair since she was a young child. Then her family moved back to London and she has lived here ever since. And, if this is right, she says this is the first time that she has done anything relating to disability.

Becky:

Yeah

Eleanor:

Congratulations and aren’t we lucky! Despite being in a wheelchair and having a visible disability this has a huge impact for pretty much her whole life. She says for her this is a testament to how much disability issues are ignored and go unnoticed and are not discussed even by people with disabilities. She’s becoming more aware of the power and inequality and how that affects her day to day activities since she was 16. OK, now I have a series of questions prepared and I think we will go from there if that’s OK?

First of all is there anything else that you would like to introduce that I haven’t already done?

I am not sure. This is so weird hearing my own voice! Well, I am Becky and I’m 18. I was born with Cerebral Palsy and Epilepsy and the list goes on. But aside from that I have a lot of different interests and I try to not let my disability get in the way of my life. I just power on and try to be as normal as I can. And, yes, that’s pretty much it.

Eleanor:

I don’t like labels and I think that most of us have multiple identities. For example I am a disabled Malaysian Chinese woman, British by marriage. Being a wheelchair user, impairment is pretty visible, and as a women of colour. So intersectionality is important to me.

What identity, if you can answer this, is the most important to you? You have said all that before or do they have equal impact on you?

Becky:

That’s a difficult question to answer. I don’t think there are separate identities. I think that everything that is a part of me becomes one identity. I think the idea of having separate identities is a bit weird because you are one person and all these things make you. So you are not just black or just gay or just disabled. You are your own person and you are made up of all these different aspects.

Eleanor:

Yes, but I think then my question is how do you find that these different identities, for example, I know that my Chinese community don’t really accept disability and I have problems there. You’d be hard pushed to find many BAEM (Black and Asian Ethnic Minority) disabled people’s organisations. There is one called National Equality Council. So that’s why the question but I think that what you have said is quite fair as I don’t think I ever thought about separating the strands in my life.

In what you said earlier in your bio, you sort of said that from 16 you feel like you have been a sort of activist. Do you want to elaborate on what shaped you on that journey do you think?

Becky:

I am not really sure I guess. I just started spending more and more time on the internet. Then from there I started learning more about activism and when I went into sixth form I kind of got my own identity and there were less rules and less restrictions. I sort of branched out and did my own study and reading.

Video 4

Becky:

And from there it really inspired me to do more and more and now I am here.

Eleanor:

Great. I think I asked because one of the themes is activism and that’s sort of part of Occupy London as well. Its great because one of the reasons I asked you is because it’s pretty important to Sisters of Frida how can we help young disabled women like yourself? So how we can help women like yourselves to show you the way or to learn with you etc. We were both at Feminism in London last week and we both remarked on the fact that there were not many visible disabled women there and I can see that Angela is here. She was at Feminism in London too. Thank you Angela for being here. We were both saying that feminists haven’t really included disabled women or women of colour in their discussions. What would you have liked as sort of support from other feminists? You know, from your experiences there because we went to different sessions?

Becky:

Well I kind of chaired a session at Feminism in London and one of the women there said something that really struck me. She was like, before I met you I never had any idea that there were black people with disabilities because you only see white people with disabilities. I was like, well that’s an interesting sentiment, thank you. I would just like for a feminist to acknowledge that there are people with disabilities that are also women that are also feminists. We are not just there in our own little bubble […….feminism] because that’s counterproductive.

Eleanor:

I can’t believe she said that! [laughs]

But that is great.

Sisters of Frida was set up because we felt disabled women were left out of the whole conversation of feminism. So how should you think, I mean this might be a tough question and might go on forever, but how do you think an intersectional network (an intersectional network that we have been discussing) would work? What support could it give you? What support would you like from it? Or what could you do with it?

Becky:

I think to have an intersectional network you have to first acknowledge the fact that there are women that have disabilities are [……]also? human beings and that having a physical disability doesn’t dull your intellect and even having a mental disability doesn’t mean that you cant have your own opinions. And before intersectionality can happen, this has to happen. And I think an important thing for intersectionality is showing young women with disabilities that just because you have a disability it doesn’t mean that you are a freak. I only have one friend my age who has a disability and she tends not to acknowledge it. Not that she is ashamed but she doesn’t want it to be something that is shared with other people and I think that is a serious problem because if people don’t want to be open with their disabilities, how can we meet people who have disabilities?

Eleanor:

I think that is perfectly fair. When I was your age I was in total denial. I just thought that I need to work harder and get on and I’ll be OK.

So, the last question here before we go on to Ruth is (pause). Well I should say, we started with Becky because its seems good to start with someone who is just starting on her journey to intersectionality and feminism and disability activism. And then going to Ruth who has been there quite a long time. Been there, done that, got the t-shirt.

So this next question is a bit more sort of focussed on something else. Disabled women are said to be twice or even three times more likely to encounter domestic or sexual violence. And one young member of Sister of Frida said that she was doing workshops in Strasbourg with young disabled women and that some were not even aware that they had been inappropriately touched because of their impairment/disability.

How do we get awareness to disabled women so that they can first of all be aware to complain about it, where should they go and how do we even start because violence against women and domestic violence is very much in the news at the moment but I think disabled women don’t seem to be mentioned.

Becky:

At my sociology lessons at school we have been looking at gender and crime and we hear all these statistics about how one in six women experience domestic violence every year and one in ten women will experience it in her life. And a certain number of women of colour have experienced domestic violence but there is never anything about women with disabilities so it kind of comes across that women with disabilities are not able to be domestically abused or sexually abused and this is a total myth and I think that this needs to be dispelled so that you can teach people that what someone is doing to you is wrong and its not just something that you should expect just because you have a disability.

Eleanor:

(clapping)

 

Fantastic. Thank you Becky.

Is there anything that you would like to ask? Or talk about anything I left out?

Becky:

I would just like to say that this is the first time being in a room with so many disabled people and woohoo!

 

(Laughing and clapping)

Eleanor:

I think before we go to questions we should ask Ruth the same questions.

OK.

Video 5

Eleanor:

This is an introduction as there may be some of you who do not know her. Ruth runs Stay Safe East, a disabled people’s organisation or DPO for short which supports victims and survivors of all forms of abuse including domestic and sexual abuse and hate crime. They’re unashamedly feminist in their approach and work to the social model and so work with any women or even men who are disabled even if they don’t identify themselves as such. They have worked with over 200 clients since they set up 3 years ago so they have a lot of case work evidence to offer. A large part of the job is around policy and strategic work in London and National level and she has also been involved in European research. She found that the barriers faced by deaf and disabled are many and wide ranging. Different forms of domestic violence can [….. ] for disabled women. They believe that safeguarding systems at times actually increase the risk and at best does nothing. It makes her think of Sojourner Truth who said “Ain’t I a woman”. Lack of accessible and appropriate support, services rampant with discrimination in the justice system and so on and so on. I was told to keep it short. Ruth, welcome. Would you like to introduce a bit more about yourself or have I missed out anything?

Video 6

Ruth:

I suppose it’s partly about your question later about activism but I didn’t land in this from nowhere. I have been a feminist all my life and disabled since my thirties. And was not one of the earliest women, I think women like Kirsten Hearn and Pat Rock who were involved in trying to make the feminist movement more inclusive I think deserve a bit of credit. I was a late comer to this but there has been a strong feminist strand of disabled women who have tried to bring the two together. But I think that there is a new generation, not just in age, but in chronology if you like, of disabled women who are starting to raise their heads above the parapet again and its fantastic to be here with Becky and also Eleanor who has been a strong part of creating Sisters of Frida. We can talk about activism later.

Video 7

Eleanor:

We haven’t talked about you.

Which identity is the most important to you or do they have equal impact on you?

Ruth:

I think like Becky, to me I’m me, I’m Ruth. But you cant divide yourself up into a series of identities and of labels. I am a lesbian and a grandmother now. If you had asked me this 20/30 years ago I would have said that I am a lesbian mother probably before anything else. I’m a disabled women, I’m lots of things. I’m a gardener, you know. Those labels are not the only thing but the important thing to me is to be recognised for the totality of who we are and not be asked to be just disabled. That was why I was quoting Sojourner Truth earlier. The whole idea that “as black women, aint I a women, as a disabled women aint I a women too” and that disabled women were seen as genderless and you even have so-called disabled toilets. I remember going to a disabled women’s conference in Germany and there was a group of women who did a skit about this. They said that toilets have three genders; male, female and disabled. Of course, we didn’t fit any of those but that’s another story. But I think that whole issue about identity is a complex one. I came from a generation where we chose a identity very consciously not only as women but very often for many of us as lesbians. And you still find that people will talk about LGBT, they will talk about gay but somehow the word lesbian is far too sexual, far too direct, and far too obvious.

You know, I think that its complex and it depends on the context, but in the end I am me and those labels are only a small part of who I am. But I want to be recognised for who I am. I don’t want to have to leave part of me on the doorstep and apologise for part of me and that includes having to apologise for my sexuality, for my life history and for being a women and being disabled etc. That’s the important thing that we don’t have to apologise but that we are also welcomed and recognised and that the experience we’ve got is recognised and taken account of in how anything is organised, done, thought about etc. And that’s the problem. I think to me, intersectionality is a new word. I had to look it up in the dictionary. We talked about multiple oppression. But it’s something that is describing a reality that is more complex. And I think you know, to me I talk about inclusion really but in the end it’s the same thing. It’s about recognising that our differences bring us together. I can’t remember the quote from Audrey Lord but there is a wonderful quote about not being afraid. “It’s not our differences that divide us but the fear of our differences” I think is the quote. I think that says it all really.

Eleanor:

If I may quickly add something to that. I was very honoured that I got to meet Rashida Manjoo who was the special reporter for sexual violence and she came to the UK and she mentioned that one of the problems is that there is gender neutrality.   So, there is a problem with disabled people’s organisations as we talk about disabled people but we do not talk about disabled women. So that’s that huge gap.

So, why do you call yourself an activist? I think you do call yourself an activist and what has shaped you in that journey?

Ruth:

I mean I would call myself a human rights activist. I think (pause). It’s funny, I was thinking about this on the way here and I think the thing that shaped me was probably my mother who was a strong feminist, who was a communist. But also the experience of growing up as a foreigner not long after the war in France where I experienced a fair amount of xenophobia including being tied to the tree for burning Joan of Arc which was a strange thing but in those days the super nationalism of Europe unfortunately was starting to a take hold again. And, very early on being aware of anti Arab racism I think more than anything else. And of stuff that happened in the early 60s when I was still a child when a demonstration of Algerian migrants in France (it was at the time of the Algerian Move of Independence) were set upon by the Police and 200 people were murdered and thrown into the river in Paris and it still affects me. It was hushed up and my mother had a friend who was in journalism and I can remember them sitting around the table talking about this. And for me, as a child, that was an impression that really stayed in me and in my memory and it still does. And the injustice of the silence around that. And I think the silence more than anything else. The mass murder of a group of people who were simply fighting for their right to self dissemination.

I was of the generation of 1968 in France, so I dutifully went off and threw paving stones at Police Officers who retaliated by raping a friend of mine. And I think that was probably seeing the violence against women and I came to Britain in the early 70s when the Women’s Movement was being born and found a movement that, I think in the early stages, was very local and very much turned to America and the States because that was the inspiration but gradually started to become more international.

For a while I was on Outright Women’s Newspaper who were a socialist feminist women’s publication at the very end of it. It’s not my fault that it closed, but at the very end of it. So, I think a lot of the kind of perspective that I have was an internationalist one because of my experience and my background.

And I was involved in trying to set up a women’s centre, lesbian mothers network, trying to fight for the right to keep our children because at the time if you said you were a lesbian and a mother that was something that (pause) the two words don’t go together. And interestingly now I find myself in the same situation working with disabled women now where the two words don’t go together where there is an assumption that if you are a disabled women you are an unfit mother. Hasn’t changed that much. It’s just the label that has changed.

I was very much involved in anti racist things and trying to stop people being deported and so on. And involved in community politics so I have always been a grass roots activist in my own neighbourhood in East London and it’s been about that. And gradually when I became disabled I got kind of dragooned into the Disability Movement by a couple of friends who basically said stop feeling sorry for yourself and get on with it, there is a demonstration to organise. I was used to organising demonstrations so I did and I haven’t looked back.

So, I think it has always been from a human rights perspective and from an international point of view and I still keep links with people in other countries. I think that’s very important in terms of understanding the experiences of disabled women for example. You know, where we are starting from is not the same in every country. Our experiences of impairment are different. And lots of other things really. And I suppose that’s my background in activism.   And it’s fantastic to see a new generation of feminism coming along who have got that international perspective.

Eleanor:

Thanks

Video 8

 

Eleanor:

Here maybe I should add that something that Sisters of Frida have been doing is getting involved with UN instruments like CEDAW which is the Convention on the Elimination of Discrimination against Women. Eleanor and I went to Geneva last year as we felt it was important to have a visible presence of disabled women and now we are also involved in the writing of the shadow report for the convention of rights for disabled people. And also we are very honoured that organisations for social justice have invited us to go along. Perhaps because there are not that many organisations of just disabled women.

So, when were talking we said that it would be good to have some kind of network set up from this. This would be the sort of nucleus to start off something perhaps. What would you like to grow from this? Or is that a difficult question?

Ruth:

I think it depends on the context and depends what you are doing.

I just want to go back to something which I forgot to mention and that is important. I was one of the founder members for the Campaign for Accessible Transport and it was the first, no second, direct action groups who campaigned around accessible transport and I think that this kind of overlaps with your question as it is about how we do stuff. I learnt an enormous amount from doing that because it was about trying to work together to do direct action which is pretty scary particularly if you have never done it before. I hadn’t done it as a disabled woman. And trying to do it in a way that is inclusive and we did manage to develop something which gave people a choice about how they got involved, what they did, whether they chained themselves to a bus, whether they got themselves arrested. It’s not rocket science and it’s probably not great news to those who are now involved in direct action. But it was quite ground breaking and it had an impact way beyond its number of people. You know, there were 100 people on the mailing list but you know you can block the whole on central London with 50 people particularly if they are wheelchair users and at the time the police didn’t know how to arrest us. There weren’t any accessible police stations in Central London. I’m afraid there are now so it doesn’t work anymore! (laughs). They’re a lot better at it now. I must admit I have been an advisor to the Metropolitan Police. But I didn’t tell them how to do some of it I must say. I kept some of it quiet.

But, I must say I think in terms of networking the important thing is about how it has changed now. There is a lot of stuff online; you know I’m useless at Facebook. I think that the kind of exchange of ideas, impressions, thoughts, trying to educate each other and trying to understand how we develop inclusive networks is really important. There is the capacity to do that because we can do a lot of it online and you don’t have to be in the same room. And you can cool down before you have a go at someone. All those feminist conferences where we kind of threw things at each other (laughs). I think it’s really nice and useful to have a bit of time to think.

So for me personally, because I work on violence against women (and disabled men occasionally), it’s having a network which is about reinforcing the feminism of it. The gender based stuff. The inclusive stuff. The intersectionality which actually allows me to put things in context.

On a personal level the research I’m involved with on European research on violence against disabled women, the fact of going to Vienna last summer and actually being with a bunch of feminists, some disabled and some not, who were working on this issue and thinking about the issues in great detail. Some were activists and some of the women were doing some extraordinary daring stuff around sexuality in places like Austria. A country where thousands and thousands of disabled people are still locked up in institutions. They’re still building institutions. And she is going into institutions to talk about sexuality with very little support. Just being able to be inspired by what other people are doing and also to learn from that to energise each other I think is really important. And that includes, you know, I think there is a need for a network of disabled women but there is a need for a wider debate and a wider exchange of experience and expertise around activism. It is really needed but in order to do that we need the mainstream events to be inclusive. You know, I am partially deaf, if at a big event I don’t have subtitles then I may as well not be there. I would be in the same situation as Pauline. Those sorts of things are really important and we have to think about that before we even get together. But from that point of view the internet is really useful. Anyway I will shut up now.

Eleanor:

Thank you.

Video 9

Eleanor:

I think here there may be a few of us that are involved with DPAG, well some of us also do the direct actions which are a little bit more hairy these days as Occupy London have also been involved I think in live streaming and supporting and I agree with you that we work with unions and with all sorts of mainstream.   And I think that is exciting and I think that like tonight we said that it’s for men and women, disabled and non-disabled as we all have to work together and it’s a battle because fighting for access and you think that should know about it and I am sure you know, for example Pauline and her friends said that I should know about and I do know about it but sometimes it is a bit difficult to all get organised. I mean we were supposed to be upstairs with a platform lift and I was having nightmares about the platform lift breaking down and all of us stranded upstairs with nowhere to go (laughs). And you know, that sort of thing is always a problem.

Now, on the schedule there should be a break but I’m thinking that maybe it’s too soon for a break? And I was wondering if people here would like to say something so that we can think about it over the break and then come back and talk a bit more about it. Maybe I should introduce Janet Price who has come all the way from Liverpool (pause background talking).

I was thinking that we should have some questions and then have a break and come back and then… What would you like to do? Oh, alright then, shall we have a break? I’m afraid we did not manage to set tea up but there is a cafe that I think is still open (background talking)…. Euston station is just across the street. Is 15 minutes enough? Or 20? OK. But there might be queues for the loos too. I don’t know. I know Euston station. I even slept in it once when I was made homeless (laughs).

So, OK. I think we shall have our break then.

Video 10

Eleanor:

It’s not so much a question and answer thing here. I think we wanted it to open up more into a conversation and there are people here that would be great if they are willing to contribute as I know they have got great stories and etc.

One of the people that I invited and was very happy when she said that she would come down from Liverpool, all the way from Liverpool, is Janet Price and also [Angrid]. And I don’t know if you guys know about the DaDaFest but she is part of that as well and has done some great work about disability and sexuality )and if you want to continue about what we have been talking about or bring in your own experiences or thoughts that would be great Janet.

Janet:

Am I alright here or would it be better if I held it (the mic)? I’ll just go a bit further back.

Well, thanks so much. I have been eyeing Sisters of Frida online for quite a while thinking feminists, disabled, feminists, let me at them (laughs). So it is really lovely to be here. I became disabled about 25 years ago now and I have been an active political feminist lesbian and for me to suddenly feel like I had lost a whole community which is what happened so many people disappeared from my life at that time and I had also moved cities and was hunting around for things to do and actually what I fell across was not other disabled feminists but disabled representation and the politics behind it and that was when i got involved with DaDaFest. One of the things that has struck me more and more as I have been involved with DaDaFest (disability and deaf arts festival)( currently about to launch our festival for this year in 4 days time check out online www.dadafest.co.uk and we are streaming some stuff but there is going to be a lot of really good stuff online. So anyway, that’s the politics and the advertising). What it has made me realise that being part of an organisation where access is key and representation of disabled and deaf people’s lives as they choose to represent them whether it’s through plays or through poetry or through films or through statues and we are very clear that we are not trying through DaDaFest, this isn’t about community based art which has its place and is really important and we support that too but this is about quality representation that tells people about how we want to be seen as disabled people and so it’s really exciting work and its developing more and more all the time. I know you got to see a lot during the Paralympics down in London and there was a lot of really good work going on and being shown here at that time. Well we get a big festival of it every 2 years in Liverpool and it is wonderful and it’s going national and we are now going global so we have ambitions.

And one of the things, that international ambition, has I think been really close to my heart because a bit like Ruth I have always been an internationalist. I mean, politics taught me that I was so ineffably middle class and able and it was about recognising the privilege of that and about the struggles of other people and the way that I could be committed to working alongside them and the battles that they were fighting.

And one of the real joys of my life is that I have been able to be very close to and work alongside disabled feminists in India. And non disabled feminists and watch the interactions and the issues that they are fighting together and how the work that has gone on between disabled and non disabled feminists in India has been something that has taught me a lot about the way that movements can start to come together and share issues. There is no sense in which they would say it’s perfect but there have been a lot of lessons that they have tried to move and work together. Now the organisation that I have had the luck to work a lot with is a feminist, human rights and sexual rights organisation called CREA and they do a lot of training of young activists. They do a lot of political representation and challenging the ways of the forms of political representation around sexuality. They have also started thinking increasingly a lot around disability and I have been working with them for 10/12 years now both doing trainings and supporting the training of other young Indian activists so that they can go out and do similar sorts of work.

It’s increasingly a very intersectional organisation and one of their greatest events that they ever held was a violence against women conference. And they held it up in Nepal and they held it in Nepal because it was a South Asian conference and they wanted somewhere that would have access for women using wheelchairs and none of the big hotels had more than one room so in Nepal they found a hotel that was just in the process of being built so Geeta, who heads up CREA, and is a force to be reckoned with, went up to Nepal and did this deal with them that they would bring the conference there if they built another 4 rooms that had wheelchair access and so they did. So you suddenly got this really good accessible hotel in Nepal and its about using those moments and that meeting had disabled women, lesbians, trans women, women living with HIV and sex workers. There were conversations going on that were quite extraordinary. You know, disabled women for whom it was their first time that they had been able to fly somewhere sitting next to a sex worker. And the sex worker saying “I didn’t know that disabled women had sex” and you know, people saying “I’ve never sat next to a sex worker, what’s life like for you?!” And so conversations happening that just don’t happen in other places and bringing together groups of people for whom the experience of violence was a common one and they had backed the conference up with some serious research with these groups beforehand so that there was a lot of participatory research that fed into it and then there was the actual experience of bringing together people and letting them have those exchanges with each other and to share those moments and really talk to each other.

And it seems to me that there is an ambition there that I think we need to claim and to really look at what is being done and the types of things that can be done if we really put some energy, some power and some thought. Just the energies behind all the movements that are here this evening. You know, all sorts of magical things can come out of it.

And just looking at the sorts of things that have emerged over the years from CREA trainings with activists around disability. A woman who was a feminist who did a lot of work around training, around sexual and reproductive rights and anti violence work, she had some contact with a group of deaf women. She went in and shared with them all of her knowledge that she had gained from working in feminism and that group of deaf women taught her an awful lot about what being a deaf woman facing violence was like. But she also learnt a lot about she needed to change her forms of presentation so that they were more accessible to a non hearing audience for example, the sort of things that she needed to be aware of. And, that you know, that we need to be aware of in an audience like this because it’s not just simply the women who are deaf and use sign. It’s the women who use hearing aids or the women whose hearing is dropping. You know, there is a whole series of protocols that we need to get our heads around. I think I have been trained by the best in the business because DaDaFest are just so on the ball about it. It’s crucial and I think that we have to be able to admit our ignorance and learn about what we need to do about access because all of us are still doing it so badly. And this isn’t getting at you Eleanor. It’s the problems of people not recognising the money that we need to do this properly, and all of the things that flow from there. So, yes, just to finish the story about the group deaf women. They have now been doing trainings around violence against deaf women which is of horrendous proportions as I think it is around most of the world including this country. But they have gone out across through India and you meet them and they are so delighted as they say they are being invited not only to North India and South India and a group from Pakistan wrote to them the other day and there is a group in Nepal that want them to go and visit. Those sorts of South Asian links that have built up and are very strong which means that they can now network much more broadly than they ever thought would be possible for them and they can do it in a way that fits with their sense of themselves as deaf women and increasingly as deaf feminist women. So that’s just one of many examples I could share with you. And I think that what has been exciting is that a group who have a real influence on training activists and really sharing skills with them have taken disability on as a serious part of how they function as an organisation. So that spreads out and begins to have an impact on all the organisations that they are working with which now involves a lot of the young activists working across India.

Video 11

Eleanor:

Thank you that was brilliant.

One of the things I have been meaning to talk about is that I started saying how Sisters of Frida was started but I didn’t actually say that it really started when the Million Women Rise invited me to go and speak at their march and me and Michelle Daley we spoke to 6,000 people at Trafalgar Square about violence against disabled women and from there, for me, I discovered that there is that gap. Following that a couple of weeks ago Michelle and I went to a premier of a film called Margarita with a Straw and that brings it back to India because I was blown away by that film and the sort of the brave intentions of Shonali Bose who was the editor and even more wonderful it was based on the life of somebody that both of us knew, Malini Chib, who didn’t come tonight (she was invited).

Michelle, do you want to come in as people have heard my voice and you are a very good speaker?

Michelle:

You carry on.

Very quickly about this film. It is truly international, intersectional. It was about a young girl who had cerebral palsy in India and she got a scholarship or her parents sent her off to New York to study because the access in Mumbai wasn’t so good for colleges and there she sort of went into a self exploration, self discovery of sexuality. She discovered that she was bisexual; she met a blind girl at a protest and got into a whole load of things you know. It is wonderful to go into a film about disability and sexuality and have the words “fuck the police” in one of the scenes. It talked about the relationship with her mother and her parents and its the whole kind of politics, the sexuality, the relationships of being disabled and being a woman who is full of curiosity. It was a great, great film. Michelle, do come in….

Michelle

I just want say that I was really excited when Eleanor told me that we have Becky coming to speak. She was like “wow, we have a young woman , she’s articulate, she knows her stuff” and I said “alright, alright you’ve sold enough”! But when I met Becky I thought you know what she is good. This is exciting as we have some fresh blood coming through. And I think that having Becky on stage is fantastic as we do need more new blood as its the young generation that we need to be working on to come through the doors and give new ideas because your experiences are so different from our experiences. You have been mainstreamed and the fact that you have said that this is the first time you have been in a room with disabled people says a lot.

My experience was that I was running away from disabled people when I was 18 because my experience was segregated in a special school and I think that there is a lot we can learn and I think that we need to make sure we tie Becky now in a different way. There is a lot that we can learn from the new generation of young people and Becky’s experience doesn’t really reflect every disabled people out there as many young disabled people don’t have the opportunity to go to a mainstream school. To have this experience, that people like Ruth who have campaigned long and hard before myself, for disabled people to have what Becky wants. Becky is the dream that we wanted when we think about young people’s experiences. What we might not of had the opportunity to achieve what Becky wanted but the fact that we can see the fruit of it is fantastic. What we want to do really is to nurture what Becky has so that she can make it better for the generation after her. And I think there is so much that we need to be able to find a way of working with people like Becky and other young people to say how do we bring the new blood in? How do we work the new blood because their experiences, and we have to be realistic, are different to our experiences? When we were growing up I thought to myself there was no such thing as accessible toilets. You had to plan your day. When you left your home, whether you drank, what time you drank as there was no such thing as this. There was no such thing as accessible buses, dropped curbs. There was a lot more logistics on how you planned you day just to do day to day things. For Becky she won’t understand that. If she wants to get on a bus she just gets on a bus. But that wasn’t a reality for many disabled people. I know I keep saying that I want to see Becky at more things and I think we can learn from people like Becky.

Another thing that is important, and Eleanor I think you touched on it, is that we have social media. This is a great way to reach people who have not been here today and I think we are talking about domestic violence against disabled people and I think that there are so many voices that couldn’t come here that are being abused and they are being abused for a number of different reasons and they may not know about the supports that are out there. People who are refugees who are fleeing violence from their countries and even people who don’t have status in this country. Having to live in certain conditions. I was talking to Lani earlier about how we reach the voices that may not even know about our groups? It is important that we find ways and using certain technology, saying technology not everyone has online access. People who are living underground in different ways. For me it’s how do we reach them? Not everybody has the opportunities that we have. People could define us as privileged disabled people.   I wouldn’t define myself as privileged but in many ways we could be for people who can’t access what we have access to. I think that this has opened a discussion and I think that it is great that we are live streaming so that someone can record it and send it off to other people to show there are groups of disabled people out there. Also, something beautiful about today is that we have different faces in the room, different colours in the room. When I started out many years back it was often “we need a black person at the table” and that used to really annoy me and I would say I’m not coming, why should I? The fact that I had been invited because I was a black disabled woman…hell, no. You invite me because I am who I am. WE need to think about how we structure certain things when we speak to people as I know for a fact that someone like Becky who is young is not going to be having “come to the room because we need young black disabled people around the table.” It’s not right to invite people in those ways. So there are lots of things to think about the way we do things and still I get invited “can you come to an event because we don’t have any representation from certain groups?” Yes we want to have diversity but don’t invite me just like that. We should be thinking about it in different ways.

OK, I think I am rambling. But I think that this is a great platform to get going. Thank you for organising it.

Video 12.

Ruth

I think that one of the things we got to remember, and I think in terms of activists, we were just talking about the independent living allowance being abolished, that’s probably going to finish off this generation of activists. It has funded PA support for the entire disability movement.

There are young disabled people now that can’t leave home, who can’t

get involved in stuff because they get only 10 hours per week support.

They can’t get out of their front their doors, physically they don’t get

access, simply because everything is cut back. I think that if you are an activist, fighting for our basic rights to services, it’s not sexy, it’s not something that politicians bother a pee about because the disabled vote is not a collective vote that people have an awareness of, it’s invisible, it’s what happens to people when they are in their own homes, particularly if they can’t get out. But actually this is a key human rights issue. People I work with are fighting to get basic support for someone who has survived domestic violence, who survived raping institutions, who is traumatised and is still being told they don’t deserve – and this word deserve keeps coming back – basic support so that they can get out of their beds, that is basic. And it’s not out on the street, because they can’t get out of bed to go on the street and we need to fight for that as well. We want to see a new generation of young disabled people, but we need to fight for their right to be there. Sorry to put a pessimistic angle on it, but I think it’s really important.

Having said that, there is a new generation of young disabled women

out there whose awareness of themselves as young women is really

strong. And at that point I’ll stop talking about Becky and hand her the microphone.

Video 14

Becky

I think it’s really exciting being considered to be part of the new

generation. I never considered myself like that, I always think of myself as an individual. I would like to say thank you to women like Ruth, because it never occurred to me that there were disabled women before me that didn’t have the opportunity to go to main stream school. It’s really important all the work that you have done, if you hadn’t existed, I wouldn’t be here. People like you need to be acknowledged, even you kind of downplay your hard work what you have done, but I think you have done a lot for the disability movement. And I would like to meet a lot more women like you because you don’t get a lot of attention.

Video 15

Ruth

Think also of other people who have been instrumental for getting

young disabled people into main street education, that has not been my

area. That has been so important in terms of inclusion in disabled and

non disabled people growing up together, but also in terms of disabled people getting a decent education. The quality of education in special schools ain’t what it should be, let’s put it that way. And a segregated society can never be an equal one.

We are part of a movement, it’s not over yet. I was interested to hear

what you were saying about India. There’s a sense that the second wave of feminism kind of died back in the more wealthy countries and actually women in India and in Latin America have taken up the

mantle and that has continued, and in terms of disabled women that has been the same. Maybe it has come back to us full circle. I would like to get into contact with that group, I would be really interested in what they are doing.

Video 16

Eleanor

We’ve been talking about the next thing we are doing to do, with Sisters of Frida, is screening a documentary of 4 disabled women who are talking about their sexuality, we’re hoping to organize that event, but I am still looking for the time to write the funding for that. Back to Michelle..

Michelle

This echoes what Ruth said, I think it’s really important, as long as we

have segregated services, we are never going to have inclusion. We have to continue the struggle and fight for disabled people to recognize that young people do need to be aware what segregation really means. The moment you have a job you tend to forget that you have to fight for our freedom. You know, because we have a book ….. accessible …….

It doesn’t mean we have achieved our freedom, because there can only

be one wheelchair user on the bus. We do really need to take people

back to the basics, to understand look we haven’t achieved full equality yet.

And also, and I am paraphrasing you Becky, questions about which

identity is important to you, I’m so glad that Becky said, well, they are

all important to me. I am who I am, that is all important. That’s

fantastic and the moment we start compartmentalise different bits of

ourselves, that’s wrong in it self. We need to be recognized for who we

are. This is just a platform, we need to keep going.

Eleanor

To continue from what Ruth said this is the beginning of something

great, let’s hope that it starts tonight. Janet, did you want to come

back?

Janet

Are there any questions on the floor?

Man in audience

You spoke about the million women march in India, we are very

interested in that in Occupy London, it was great to hear that you

actually went there and met some of these amazing women. It’s

interesting that it is women, Julie, you would know more about that.

Women now make up 70% of farmers, that also means that they are

more liable to have accidents and incur harm or injury. But they are

supplying the world with food we are eating in London here today

which is very unacknowledged. But as I said, it was wonderful to hear

that reference, I wasn’t aware that any people from our world, the first

world, the western world, attending, so I’ld like to hear more about

that.

Woman in audience

Can I just say one comment for OT’s. Recently I was teaching on a

course for Occupational Therapists. At the end I said to them, our

identity is more than just our disability, it’s getting people to see us

beyond our disability, see us as we say: we are women, part of a global citizenship. We are much morethan our diability. We have to keep reminding them our disability is not our identity, it’s just part of what we are.

Video 18

Man in audience

I was given a diagnosis by a doctor, another doctor came along and

said, the diagnosis was probably wrong. But, you know something,

everybody is disabled – I’m using that word very loosely – if they think

they are perfect. The world is disabled by not being sensitive about

other people in the world. My problem is your problem, everybody’s

problem should be everybody’s problem.

On identity. Nobody here can know their identity until the world

understands its identity and the worlds identity needs to incorporate the potential identity of every creature. And everything that happens on the planet. We have a big problem about identity, the world actually does not know what it is. The politicians who rule this world like gods with tridents and blazing with fire, they do not understand their own identity, they do not understand the functionality of the world, what the world should be about. Everyone can enable the world to discover its true identity, by empathy, by caring in a really authentic way. Sorry if I went on a bit too long, it is about passion and passionate words.

Ruth

Thanks for that. There’s a lot of problems around the word disabled

and about the concept of disability. I think it’s a complex issue and I

think everyday language uses the word disabled as a negative thing,

crippled, blind to the truth, deaf to reality, all that kind of stuff. I’m

not going to give you an advanced course in disability and equality and the social model. To me being disabled is about your pride, it’s not something to be ashamed of, that is not to say that the reality of our impairment which is about our conditions, is not sometimes difficult.

But it’s not the only thing about me, I can peel the carrots, it’s not the

main thing. But who I am, part of my identity of being a disabled

woman, is part of who I am, not having to apologise for being a disabled woman to me is so crucial to our identity as a disabled women, not seeing the fact that our bodies, our minds, our ways of seeing the world happen to be are different than other peoples. And that is not a problem, and I think we were trying to get at that, its absolutely crucial to our sense of pride, being able to live our lives as disabled women, the fact that we might have to do things differently, that we pick up our dinner with our feet not our hands, we might happen not walk but wheel, the fact that being blind is not a loss but who you are, as long as we perceive disability as less than, something that is a loss, that is a shame, it’s so sad. ‘Isn’t it wonderful that you speak out ’, because you are a disabled woman

Yes, on one level it’s wonderful because we face so many barriers, that we are able to speak out, on another level, its just life. We are what we are and in fact we are very proud of being a disabled woman. That identity is something to be claimed, so many of us are actually ashamed of who we are and we feel we have to apologise for ourselves. As a movement if we can create a space where disabled people, women in particular, can be themselves, that does involve doing practical things, but also talking about ways of thinking, doing and knowing that together we are a heck of a lot stronger.

20.

Eleanor

We talk about disabilities not just our identities. This may be the

appropriate place to say that our wonderful friend Kirsten can’t be

here, because she is, what do we call it, she is celebrating her, what do

you call it?? I don’t know what the word is, paganism? O yes, she is a

witch! (cheers from the audience) Doing the rights, whatever you do as

a witch,… that’s what I want to end on, we don’t have one identity,

sometimes a thing can be more important than just being disabled

women, we have other roles to play.

Thanks you so much for coming, and for the providing of the life

stream and thank you Occupy London for providing the space and the time. Disabled women’s right to Occupy!

Please put your name down so we can let you know what we are doing

(with help from Lani Parker and her PA – many many thanks, to Frieda Van de Poll too)

Many thanks to Occupy London and inka stafrace
occupy london  & polly tikkle productions

Recommendations on disabled women for the UK Govt from CEDAW committee

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Read the recommendtations at:

http://tbinternet.ohchr.org/_layouts/treatybodyexternal/Download.aspx?symbolno=INT%2FCEDAW%2FCOC%2FGBR%2F14761&Lang=en

(to follow in its entirety read the CEDAW page.)

Below are all the recommendations that mention disabled women….

20. The Committee is concerned that the austerity measures introduced by the State party have resulted in serious cuts in funding for organisations providing social services to women, including those providing for women only. The Committee is concerned that these cuts have had a negative impact on women with disabilities and older women. ….

21. The Committee urges the State party to mitigate the impact of austerity measures on women and services provided to women, particularly women with disabilities and older women. ….

42. While noting the increase in the representation of women in the public sector, the Committee is concerned that women continue to be significantly underrepresented in certain fields, including in parliament, in the judiciary and on public sector boards. The Committee is particularly concerned at the low representation of black and minority ethnic women and women with disabilities in political life.

43. The Committee calls upon the State party:
(a) Continue to take concrete targeted measures to improve the representation of women in Parliament and the judiciary, particularly black and ethnic minority women and women with disabilities; and….

46. The Committee recalls its previous concluding observations of 2008 (A/63/38, paras. 286 and 287) and appreciates the State party’s efforts to provide flexible working arrangements for women and men, and to introduce shared parental leave envisaging new legislation in 2015. The Committee is concerned at reports of persistent discrimination of pregnant women in employment and their access to justice. Furthermore, the Committee is concerned at existing occupational segregation and persisting gender pay gap, and the high unemployment rates of women with disabilities. ……

47. The Committee recommends that the State party should:
(c) Create more opportunities for women with disabilities to access employment; ….
52. The Committee is concerned at reports that women with disabilities, older women, asylum seeking women and Traveller women face obstacles in accessing medical healthcare. The Committee is particularly concerned that women with disabilities face limited accessibility to pre-natal care and reproductive health services.

53. The Committee urges the State party to:
(a) Strengthen the implementation of programmes and policies aimed at providing effective access for women to health-care, particularly to women with disabilities, older women, asylum-seeking and Traveller women;
(b) Pay special attention to the health needs of women with disabilities, ensuring their access to prenatal care and all reproductive health services; and …

54. The Committee recalls its previous concluding observations (A/63/38, paras. 266 and 267) and notes the measures taken to address the recommendations in the Corston report on women in the administration of criminal justice. ….
The Committee is also concerned at women’s limited access to mental health care in prisons, and at the over-representation of black and ethnic minority women in prison.

55. Recalling its previous recommendation, the Committee urges the State party to:
…(c) Improve the provision of mental health care in all prisons;

62. The Committee notes the reforms to the welfare benefit system in order to consolidate benefits and tax credits into a single payment under the Universal Credit system. However, it is concerned that, under the Universal Credit system, benefits and tax credits will be paid into a bank account of one member of the family, which poses risks of financial abuse for women due to power imbalances in the family, particularly if payment is made to an abusive male spouse…

63. The Committee urges the State party to adopt preventive measures against potential exploitation of the Universal Credit system by an abusive male spouse…..(something that we also raised for disabled women)

Post CEDAW 55th session and disabled women’s access to the justice

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Poster at the Palais des Nations

A main consensus among all the UK NGOs who went to the 55th CEDAW session in Geneva was how access to justice was being eroded by the austerity measures put into effect by the present UK coalition government.

As Sisters of Frida members, we self funded ourselves when we went to Geneva to join the other NGOs. We saw it  important that disabled women were represented with other women organisations (and as a precursor experience to the CRPD coming up later).  There was a rush to get creditation to go (many thanks to NAWO for helping us with that) and research about accessible accomodation, travel, maps, travel documents etc). CEDAW was part of the whole ‘justice’ dimension – our rights were not granted us as a result of the benign good nature of our government but because of the international campaigns for human rights set about into conventions by the United Nations and the European Union (with rulings such as by the Court of Human Rights in Strasbourg). These are some of the human rights instruments that we can use – even if we have to exhaust the domestic legal systems first. This is where we can hold our own government to account.

I felt hugely inadequate to the task in comparison – there was so much to take in. Even when we had contributed to the shadow report (credit to Sister of Frida member, Dr Armineh Soorenian) there were so many welfare reform changes to remember and so many cuts to disabled people services (without the disaggregated data) that we needed to prioritise and formulate as questions and recommendations to the CEDAW committee  .  We could have made a better case for disabled women if we had more experience in the procedures but then the essential fact was that we were there as disabled women and our presence were felt and many of the sister NGOs included disabled women in their presentations. A word of caution for disabled women taking part in these CEDAW sessions is the pace and pressure – as someone with a chronic fatigue syndrome (post polio) I had to withdraw from certain things.  It might have affected my temper too – I apologise unreservedly for the moments when it got a bit frayed.

–Eleanor Lisney

Stephanie Ortholeva‘s article – Women with Disabilities and the Justice System: Rights without Remedies    at the World Justice Project website is great in giving the whole access to justice issue a framework. She’s kindly allowed us to repost it here.

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One example of how society has come to view gender and disability is demonstrated by the iconographic historical symbol of justice, the blindfolded Lady Justice. In a creative book, “Representing Justice: Invention, Controversy, and Rights in City-States and Democratic Courtrooms”, Yale law professors Resnik and Curtis trace the philosophical uses of the symbol, “Blindness as a deficit presumes that sight is requisite to understanding, whereas blindness as an asset presumes that sight can corrupt judgment.”  This iconic image highlights the ongoing debates about the role of women with disabilities in the justice system.  Historically and to today, many legal systems restrict the legal capacity of women who are blind, as well as women with other disabilities, solely because of their disability.  This contrasts with that blind (or blinded) icon of justice, Lady Justice, seen as a symbol of rationality and even handedness.

International Normative Framework. 

The intersection between the Convention on the Rights of Persons with Disabilities (CRPD), and the Convention on the Elimination of All Forms of Discrimination Against Women (CEDAW), both address legal capacity, access to justice, equal recognition before the law, gender and disability stereotyping, state due diligence obligations, among other issues. CRPD Article 6 adopts a gendered lens-recognizing the multiple and intersecting dimensions of women’s lives  and Article 12 requires equal recognition before the law, or legal capacity. Article 13 includes the right to access to justice, requiring States to provide procedural and age-appropriate accommodations, to facilitate effective participation.”  CEDAW Article 15 requires states to ensure that men and women have equal access to the legal system, ensuring legal autonomy.  Because women with disabilities have rights under both CEDAW and CRPD, State Parties have a due diligence obligation to afford them full and fair legal capacity, and access to the justice system.

Addressing Violence Through the Legal System. 

As noted in “Forgotten Sisters – A Report on Violence against Women with Disabilities:  & Overview of Its Nature, Scope, Causes & Consequences” authored by me and Professor Hope Lewis, violence against women with disabilities occurs in the home, community, perpetrated and/or condoned by the state and private institutions, and in the transnational sphere. Forms include physical, psychological, sexual, financial, entrapment, degradation, neglect, trafficking, detention, denial of health care, forced sterilization and psychiatric treatment, among others.  Women with disabilities are more likely to experience violence than non-disabled women, over a longer period, resulting in more severe injuries.  Their abuser may also be their caregiver; someone relied on for care or mobility.  In various ways the justice system itself (and therefore the state) perpetrates and/or condones the violence through various barriers.

Women with Disabilities as Witnesses. 

The justice system often fails to see women with disabilities as competent witnesses, a result of damaging stereotypes, or difficulties in communication without accommodations, as highlighted by the work of the Disability Discrimination Legal Service. The general failure of society to see women with disabilities as sexual beings and the tendency to “infantilize” them, while on the other hand, seeing women with mental disabilities as hypersexual and lacking self-control, results in their complaints or testimony being disregarded.

As noted by Benedet and Grant in “Hearing the Sexual Assault Complaints of Women with Mental Disabilities”, the mere fact that a woman has a disability, especially psycho-social or intellectual disabilities, or that she require assistive communication or accommodations, may result in the justice system viewing her as lacking credibility.  Judges may require more corroborating evidence when the witness is a woman with disabilities than in other cases, and prior mental health treatment may be used to discredit testimony. The complainant frequently does not serve as sole witness against the accused. Women with cognitive disabilities may have more difficulty with long term memory or remembering the sequence of events, which may make them appear less credible. Paternalistic attitudes may cause the legal system to view them as too fragile to withstand rigors of examination.

Exclusions of testimony are particularly problematic in gender-based violence and sexual assault cases, where the testimony of the parties and the credibility of the witnesses are exceptionally important, placing women with disabilities at even greater risk, since perpetrators may be more likely to attack them because they know that their complaints may be taken less seriously.  If prior complaints were dismissed, they are less likely to report abuse in the future, perpetuating the violence.

Forced Sterilization. 

Under the CRPD, forced, coerced or non-consensual sterilization is a violation of human rights, and women with disabilities have the right to retain fertility on an equal basis with others.  International Federation of Gynecology and Obstetrics Guidelines state that only women themselves can give ethically valid consent to their sterilization, and sterilization cannot be made a condition of access to medical care or other benefit.  Despite legal prohibitions, involuntary sterilization has long been used to restrict the fertility of some persons with disabilities, especially those with intellectual disabilities.

The failure of some countries to prohibit involuntary sterilization has been challenged before international tribunals.  In Gauer v France, at the European Court of Human Rights, a case was filed on behalf of five women who were sterilized without their consent as a form of contraception.  Sterilization also has been used as a technique for menstrual management, but it is rarely the only option and should not be done without informed consent.  Women with disabilities should have access to voluntary sterilization on an equal basis with others but not forced to undergo such procedures.

Discriminatory Termination of Parental Rights. 

Stereotypical views of women with psychosocial, intellectual or physical disabilities as “unfit” mothers may result in termination of parental rights by social service agencies or through divorce and child visitation and custody proceedings, especially when the other parent does not have a disability, according to the research of Lightfoot et al. in “The Inclusion of Disability as a Condition for Termination of Parental Rights.”  Fear of women with disabilities as parents persists, although evidence demonstrates that parents with disabilities are no more likely to maltreat children, or to raise so-called “defective” children than non-disabled parents.

Statutes in many countries on termination of parental rights, child custody and divorce include disability-related grounds for termination of parental rights or loss of custody, and may emphasize and focus on disability status rather than actual parenting skill or behavior, implicitly equating parental disability with parental unfitness.  Because of such legal definitions and societal prejudices, mothers with disabilities may be subjected to greater scrutiny by social service agencies than non-disabled women.  Fear of being incorrectly perceived as an unfit mother by a court on the basis of disability, and the breakdown of their relationship with children, has frequently discouraged mothers with disabilities from separating from an abusive partner.

The Disability and Parental Rights Legislative Change Project, University of Minnesota, “Guide for Creating Legislative Change” notes that in order to prevent disability discrimination, statutes should be free of discriminatory language; affirm that the statute cannot be used for disability discrimination; acknowledge that successful parenting can occur with accommodations; and require multidisciplinary approaches to address this situation.

These selected examples of limitations on access to justice for women with disabilities, and the ways in which the justice system itself violates their human rights, accentuates the urgent need to include issues of concern to women with disabilities in legal reform efforts addressing access to justice.

* This article is adapted from Stephanie Ortoleva & Hope Lewis: “Forgotten Sisters – A Report on Violence against Women with Disabilities:  & Overview of Its Nature, Scope, Causes & Consequences” (August 2012) and  Stephanie Ortoleva, “Inaccessible Justice:  Persons with Disabilities and the Legal System,” International Law Society of America, Journal of International and Comparative Law, 17 ILSA J. Int’l & Comp. L. 281 (Spring 2011), both of which can be accessed at:  http://ssrn.com/author=1875099.  

Have You Brought Your Disability? Here’s Your Double Standard

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Reblogged from and with thanks to Free Thought Blogs written by Anita J.

I want you to picture this hypothetical scenario. Upon arriving at the destination, a woman is about to get out of the car. One of the lesser known persons waiting outside lends his hand offering to help which she politely refuses. A moment later as she’s almost done, he suddenly grabs her inappropriately under the shoulder and pulls her out, ignoring that she had declined and making her uncomfortable. What would you call this act? Disrespect? Harassment? Some may say groping, depending upon the nature of contact and gender dimensions involved. Most people, however, would surely agree it is unacceptable behaviour to touch another person like that without their consent. They would probably express their disagreement by openly questioning his action.

Now imagine the situation happening for real. Only this time, she was getting out of the car and transferring onto her wheelchair. The same incident took place but nobody in the scene showed any objection. Why would they when they don’t see it as problematic? When all of it was seen as natural or even ‘good’ conduct? No one confronted the man’s behaviour. Neither did I. All I could do later on was wishing the anger and frustration had hit me before the pain and humiliation. Yes, I’m that disabled woman.

And why pain? Because this isn’t the first time I’ve experienced lack of consideration for personal boundaries from others, nor mine an isolated or rare incident for a disabled person. Meeting someone with a visible disability it seems is a free golden ticket for many to break away from those darned social norms they otherwise have to follow as civil beings. Unwarranted pats, strangers inquiring about my impairment before even asking my name, women I meet for the first time wanting to examine my hands or legs.. all that had become so routine that until the age of 19 I didn’t recognize the oppression of it and used to feel guilty when at times I refused participation. Like somehow I owed it to them. Had the above mentioned incident happened to a non-disabled woman, the conversation would have immediately (and rightfully) been on indecency, violation of consent, unsafe environments, and every other argument that points in the direction of disrespecting autonomy and infringement of bodily integrity. But add disability to the equation and the very same reasoning gets replaced with muddled excuses or efforts to frame it as an overreaction to a not-so-serious issue. I can almost hear it.

“But he was just trying to help you.”
“I think it was made clear I didn’t need it. Besides if you really want to help someone, isn’t following their reaction the right way to do it?”

“I’m sure his intentions weren’t bad.”
“Maybe not. But intentions aren’t always necessary for something to be inappropriate. I could attempt to insult a man by calling him a pussy and it would still be sexist even if engaging in sexism wasn’t the plan on my mind.”

“Ok so you’re disabled and now you’re saying you shouldn’t be assisted? Isn’t that being arrogant?”
“I didn’t say I wouldn’t ever want any help. I’m just saying I didn’t require it in this particular case. What he did was the opposite, it was hurt. Please understand the difference.”

“Fine, I get that it must have been bad for you. Now just let it go. Why are we even talking about this?”
I don’t know, maybe because for a brief moment I had the delusion I was equally human…

Let’s have a look at this in the larger social context. Study after study show that women with disabilities are twice as likely to experience domestic violence and other forms of gender-based and sexual violence than non-disabled women, are likely to experience abuse over a longer period of time and to suffer more severe injuries as a result of the violence. Similar but more often than non-disabled women, their abuser is someone close to them. It could be their guardian, spouce, relative or caregiver. [Quoting one of the links] “Frequently they do not report the violence. Institutions of the justice system are often physically inaccessible and do not provide reasonable accommodation, they often lack access to legal protection and representation, law enforcement officials and the legal community are ill-equipped to address the violence, their testimony is often not viewed as credible by the justice system and they are not privy to the same information available to non-disabled women.”

Yet response to this obvious reality remains quite minimal. The mainstream media and larger public while becoming increasingly conscious and giving more visibility to awareness generation regarding gender issues, are yet to turn proper attention towards those affecting disabled women. What are the reasons they face such discrimination? According to the same study, “women and girls with disabilities are at high risk of gender-based and other forms of violence based on social stereotypes and biases that attempt to dehumanize or infantilize them, exclude or isolate them, target them for sexual and other forms of violence, and put them at greater risk of institutionalized violence.”

And how do we know that? From countless experiences like the one above.

Statement for CEDAW Comittee Status of Women with Disabilities in the Republic of Serbia

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Lepojka Čarević

 

Many thanks to Lepojka Čarević who kindly allowed us to publish this oral statement at the CEDAW 55th Session

Madam Chair and Members of the Committee,

I am woman with disability and I represent four organizations of women with disabilities, who participated in writing of Shadow report. At the top of these organizations is the union “Network … OUT OF CIRCLE – Serbia” whose mission is to improve the position of women with disabilities and the elimination of all forms of violence and discrimination.

Our Shadow report covers the situation of women with disabilities in Serbia in all spheres of social life, but I want to particularly draw attention to two areas:

The first area of ​​discrimination against women with disabilities is the state’s response to sexual violence. The crime “rape” in our Criminal code does not apply when victims are women with disabilities. Crime that is used here is “sexual intercourse with defenseless person” where the prescribed sentence is less than for raping. For women with disabilities cannot be applied the Family low measure of “eviction abuser from the apartment”, because they depend on the abuser in performing everyday functions (getting up, dressing, toilet …). In Serbia, still there are no support services for them to meet these needs. They cannot get away anywhere, and the existing safe houses are not accessible and do not accommodate them. Institutions where they ask for protection are not accessible and social benefits do not give them priority in realization.

The second area is to protect the reproductive health of women with disabilities. The use of these rights is extremely difficult to implement, because of the prejudice that they are asexual, that they do not need to have sex; they do not need to give birth. There are only 9 gynecological hydraulic chairs, and one mammography available for women with disabilities in the health centers.

Lepojka Čarević

Oral Statement (CAPE VERDE) to CEDAW Committee 55th session (from disabled women association)

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Where Cape Verde is concerned, the only NGO here was from a disabled women association! We thank them for their statement which shows how similar is the discrimination is against disabled women globally

 

Committee of Women with Disabilities of Capeverdean Federation of Associations of Persons with Disabilities

 Good afternoon Madam Chair and Members of the CEDAW Committee,

I am Jandira Monteiro, reading the following statement on behalf of MARIA NALDI DA VEIGA who is present here but is Portuguese-speaking.

Maria represents the Committee of Women with Disabilities of the Capeverdean Federation of Associations of Persons with Disabilities and three Groups of Non-Governmental Women’s Organizations.

 

We would like to highlight the following issues concerning women and girls with disabilities:

  • the lack of inclusive and quality education;
  • there is no equal employment opportunities for women with disabilities compared to men with disabilities and women without disabilities;
  • the forced sterilization which is a form of violence against women and girls with disability;
  • lack of special assistance mechanisms to have full access to justice and protection mechanisms especially in reporting cases of violence against women
  • the experience of multiple discrimination based both on gender, disability and other systemic of historic discrimination. Due to this intersectionality, they often face inequality in access, opportunities and benefits

 

Although the right to education for all children is safeguarded in the Article 36 of the basic law on education of Cape Verde, girls with disabilities are excluded and have their right to education violated. The participation of the female students is 44% and for boys is 56% according to the gender assessment from 2009. If, in general terms, it appears that girls and women are at disadvantage relatively to boys/men with the regard to the rate of school attendance in Cape Verde, this disadvantage is even more pronounced when we talk about girls/women with disabilities. Girls with disabilities are excluded from the education system, either by the family that often overprotects or underestimates or by the system that is not comprehensive or affordable.

 

The provision of reasonable accommodation and accessibility in general, by widening access programs to the professional and work world, both in access to vocational training and employment opportunities also emphasized as necessary. Women with disabilities reported discrimination in access to job, employment and income generation. As a result, more women, particularly women with disabilities often feel trapped in abusive relationships because there are no effective measures to survive independently if they decide to leave such a relationship.

 

In Cape Verde, there is the practice of sterilization of women with disabilities, especially women with psychosocial disabilities without the informed consent of the concerned person.

The Government of Cape Verde should create conditions to ensure communication in Braille and sign language including other necessary assistive mechanisms for women and girls with disabilities in order for them to be systematically consulted and actively involved in the formulation of laws, policies and strategies relating to them in all areas.

 

The Constitution of the Republic of Cape Verde does not provide a comprehensive definition of discrimination against women with disabilities. It is critical that the Government of Cape Verde to recognize in our Constitution and ordinary laws that denial of reasonable accommodation is considered a form of discrimination. The denials of reasonable accommodation are lack of braille programme, no official recognition of sign language, lack of accessibility to public and private buildings including other necessary assistive mechanisms.

 

The State should take steps towards changing societal attitudes by increasing awareness about the rights of women and girls with disabilities with the appropriate public and private actors, through better information, education and training.

 

There is a lack of available data and studies on the violence against women and girls with disabilities. Hence, it is crucial to prioritise a comprehensive database on women with disabilities in Cape Verde.

 

Thank you!

Day 3 UK Government CEDAW examination

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In the room where the CEDAW committee questions the UK government delegation.

On Day 3 (July 17th), the Committee on the Elimination of Discrimination against Women  considered the seventh periodic report of the United Kingdom on its implementation of the provisions of the Convention on the Elimination of All Forms of Discrimination against Women.

This is the day we were building towards with the oral presentations, lunch presentations – we gave the CEDAW committee our concerns to help them formulate questions to the those representing the UK government – the panel was led by Helene Reardon-Bond, Director of Policy, Government Equalities Office. The delegation of the United Kingdom in the room included representatives of the Government Equalities Office, the Home Office, the Department of Health, the Department for Work and Pensions, the Department for Business, Innovation and Skills, the Permanent Mission of the United Kingdom to the United Nations at Geneva, the Scottish Government, the Welsh Government and the Northern Ireland Executive.

Joining the discussion from London via video-conference were representatives from the Treasury Solicitors, the Foreign and Commonwealth Office, the Ministry of Justice, the Department for Business, Innovation and Skills, the Department for Work and Pensions, the Department of Health, the Home Office, the Department for Communities and Local Governments, the Department for International Development, the Ministry of Defence, the Treasury, the Scottish Government, the Welsh Government and the Northern Ireland Executive.

It was a very long day from 10 am – 5pm with a break for lunch. The exchange of questions and responses do not have any input from NGOs but we did make some responses for example when Helene Reardon-Bond said there’s no evidence whatsoever to show that women are disproportionately affected by austerity measures – it was greeted with derisive laughter.

Some of the questions raised about or on issues impacting specifically on disabled women were:

- question on disabled women in politics (response given was on the available funding provided for by Access to Elected Office for Disabled People Fund and stats on people who had been awarded broken by gender difference – I didnt jot down the numbers in time)

- question on lack of employment opportunities for disabled women (response given was on the Disability Employment Strategy ? and how more funding would be given to Access to Work to help disabled get into and stay in employment)

- question about Universal Credit and how it could affect the dependence of women in domestic abuse (response was that payment exceptions may be possible, including the splitting of payments in specific situations of potential abuse. )

The last response might also apply, where disabled people are concerned, to carers of family situations?

Of course questions pertaining to access to justice, Legal Aid, residence requirements, domenstic violence have also relevance to disabled women in that disability intersects across gender issues.

Here is the UN Press Office  press release on the UK Government’s examination by CEDAW.

When the meeting was over we had to write a series of recommendations for the CEDAW committee to consider. We went off to do them according to our own expertise areas – we were to focus on the topics discussed unless there was some burning issues which were left out – these can be incorporated into the mentioned areas.

the UK delegation lead by Helene Reardon-Bond, (next to the chairperson)

Read also When cuts cost lives: women’s economic independence and domestic violence (Scarlet Harris, Touchstone Blog)

Opening statement to the Committee on the Elimination of Discrimination against Women (CEDAW)

Watch the videos (no captions and sound not brilliant)

thank you Charlotte Gage for links