Category Archives: Sisters of Frida

The UK CEDAW Shadow Report – Women’s Equality in the UK: A health check

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Sisters of Frida has been part of the UK CEDAW Working Group for some time now and Armineh Soorenian was largely responsible for collating a contribution for us about disabled women in the shadow report.

The UK CEDAW Shadow Report – Women’s Equality in the UK: A health check (http://thewomensresourcecentre.org.uk/wp-content/uploads/Women%E2%80%99s-Equality-in-the-UK-A-health-check.pdf)  – has been produced by the CEDAW Working Group, a coalition of 42 women’s and human rights organisations from across the UK in preparation for the examination of the UK Government by the UN CEDAW Committee in July 2013.

Zara Todd and Eleanor Lisney represented SoF at the launch last week. Here are some of the reports about the successful launch -

http://thewomensresource.tumblr.com/post/50411742451/successful-launch-of-the-uk-cedaw-shadow-report

Mentions in the press:

http://www.guardian.co.uk/society/2013/may/13/government-cuts-reversing-gender-equality-gain

http://disabilitynewsservice.com/2013/05/fridas-sisters-ensure-un-will-examine-disabled-womens-issues/

Zara and Eleanor

Zara and Eleanor (photo by Pete Riches)

Part of the CEDAW Working Group - Eleanor with Charlotte Gage

Part of the CEDAW Working Group – Eleanor with Charlotte Gage  (photo by Pete Riches)

Michelle Daley : April 11 Impact of the welfare reforms presentation at the London LGBTQ Learning Network event: Inclusion

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Michelle Daley Michelle Daley did a presentation (with Eleanor  Lisney who was not able to be there) at the London LGBTQ Learning Network event: Inclusion.

Here is her presentation:

Thank you for inviting Sister of Frida to speak at your London LGBTQ Learning Network event: Inclusion. We have been asked to present on the ‘impact of the welfare reforms particularly to disabled people’.

 

We want to begin by asking you what the word ‘reform’ means as we believe it will help to further our discussion. Reform simply means to change – with hope for the better. When in fact the Coalition Government has wrongly used the word ‘reforms’ as a disguise to mask their intended meaning to ‘cut’.

 

This is one of the biggest Welfare Reforms cut to take place since its inception in 1940’s after the Second World War. Before we continue we want to provide some context to the discussion by looking at how the Welfare System came into existence and purpose to its citizens.

 

It was The Report of the Inter-Departmental Committee on Social Insurance and Allied Services, known commonly as the 1942 Beveridge Report which has been heralded as an influential document. The recommendations from the report helped to shape and establish the Welfare system for the state to provide a comprehensive system covering every citizen regardless of income from cradle-to-grave. However over the years various Governments have made great promises before electorate over the Welfare system without delivering on their promises. The Coalition Government is a clear example as before coming into power they did not assert their intention to impose cuts. After coming into power they have withdrawn support in such a way that discriminates against the most disadvantage groups of people in society, the very people they should be protecting. These Welfare reforms are a far cry from the comprehensive system outlined in the 1942 Beveridge Report. To the contrary, we have a Government where the political process that is opposed to respecting the need for a universal Welfare system and thus has dismissed the recommendations identified in the 1942 Beveridge Report.

The government has said they want to cut public spending by £63.4 billion by 2015.

So what changes have been made and how will the disabled people be affected by them?

The Guardian online on Wednesday, 27th of March 2013 reported that “thousands of disabled people will be hit by up to six different welfare cuts, with the very worst off potentially losing up to £23,000 each over five years”. And as a result of the Welfare Cuts they estimate that by “2017-18 about 3.7 million disabled people will collectively lose £28bn as a result of the reforms. Individuals will be hit by one of seven combinations of welfare cuts and small numbers could lose more than £20,000 each.” (Patrick Butler et al, 2013, np).

We are already seeing Councils cutting vital services for disabled people such as drop-in centres, transport and advice centres are also being targeted by these cuts. Another subject included the Independent Living Fund (ILF) which was withdrawn it is now local authorities responsibility for supporting ILF users.

We looked at the Channel 4 News online website (Channel 4 News, 2013) to show the list of benefit changes and the effects of the welfare reforms. The benefit changes listed are:

  • Since January 2013 Child Benefit was withdrawn from families where someone in a household has an income of more than £50,000.

 

Now in April 2013 we will experience:

  • Council Tax Benefit being replaced by “localised support” through local councils. The change aims to reduce the annual Council Tax Benefit bill by 10 percent.

 

  • Disability Living Allowance is to be replaced by the personal independence payment (PIP). PIP will involve the introduction of “objective assessments” to decide on the eligibility criteria. The government hopes PIP will reduce expenditure by 20 percent by 2017.

 

  • Housing Benefit will be reduced for people living in social sector housing who have a spare room. Tenants must either downsize to smaller accommodation or make up the difference in their rent.

-      by 14 per cent if they under-occupy by one bedroom

-      by 25 per cent if they under-occupy by two or more bedrooms

 

  • Crisis loans, which are given when waiting for benefit claims to be processed, are to be replaced by “payment on account” Other crisis loans/community care grants have been abolished.

 

  • Tax Credits, when finalising tax credits, the threshold for deciphering the level to which a person’s income can increase by, has decreased by 50 percent from £10,000 £5,000

 

  • Benefit Cap will limit benefits to:

-      £350 per week for a single adult with no children

-      £500 per week for a couple or lone parent, regardless of the number of children they have. (Both of these benefit caps will include housing and council tax benefit, and will require the individual/family to pay their landlord the housing benefit directly).

 

  • And from April 2013

The launch of Universal Credit will be piloted within certain areas within North West of England. The Universal Credit will go live across the rest of the country later this year.

 

The Coalition Government instigated further changes to the National Health Services (NHS) as part of the austerity measures. Most of the NHS’s budget will be managed by Clinical Commissioning Groups they will have the responsibility to decide how to spend funds on local health services. One of the worries we have with local services managing budgets in this way it will result in inequalities and unfair practices and costly patients being turned away as we already see postcode lottery of treatment in the NHS.

A report produced by Dr Simon Duffy (2013) of The Centre for Welfare Reform on behalf of the Campaign for a Fair Society looked at how the cuts target disabled people. It found that disabled people are 9 times more likely to be burdened with poverty compared to the rest of the population. He also says that those with severe impairments are 19 times more likely to be burdened with poverty.

The very intention of the Welfare system was to provide citizens with a comprehensive system for everyone. For many disabled people the changes in our lives have been brought about through the improvements of the welfare state especially when we compare it to the Poor Law. The Fair Society report (Dr Simon Duffy, 2013) states “social care ensures people can carry on as independent and contributing citizens” (p.26) and points out how Social Care can prevent:

  • Social isolation, abuse, exclusion and the inability of individuals to fully contribute to society.
  • Reduces hospital admissions and the length of stay in hospital.
  • Institutionalisation, including the use of private institutions like Winterbourne View.
  • Family breakdowns, prison costs and abuse.

Source: The Fair Society report (Dr Simon Duffy, 2013).

The Government would like us to believe that there is a shift in power and that control has been given to disabled people to choose how their needs will be met. However the reality is that cuts have severely reduced disabled peoples’ choice and control to achieve real independence. The Government may use the rhetoric but their political processes and practices are at odds and often fail disabled people.

We would like to share two cases with you just to illustrate the effects of these cuts on disabled people already. Case A is of an individual that was in receipt of 22 hours of social care paid in the form of a Direct Payments. Following a review it was withdrawn and the individual was told that their needs could be met through equipment. In Case B the individual was in receipt of a 24 hour support package. They employed a team of personal assistants and again following a review it was felt that their needs were too costly and alternative ways had to be looked at to reduce that package, this included placing them in a residential home. What you will find with these two cases is that the individual’s needs had not improved or changed in any way but the criteria’s have become more rigid making it more difficult for people to access services.

As we have just shown welfare cuts are implemented to segregate many disabled people in a way which is disgraceful, not only making them dependent and unproductive but also subjecting them to scrutiny and horrendous conditions. Many disabled people will not be able to meet their basic human needs and are forced to make tough decisions such as whether to heat their home or go without food. And for many disabled people having to compromise in this way has the ongoing potential to result in serious health problems.

Various reports have shown that there have been an increase in food banks but for many disabled people however they are not able to access these vital services for various reasons. Such food does not always meet dietary needs and there is often a lack of personal assistant support to enable them to access these services and/or places.

For a vast majority of people these cuts and changes are happening too fast and sudden. On Saturday, 6th of April 2013 Aljazeera News reported that the Coalition Government claim the Welfare Reforms are “just getting back to basics and those that can work should work and that a life on benefits most not be an attractive option…” Speaking in the same report George Osborne the Chancellor of the Exchequer said “the benefit system is broke… and the British people badly want it fixed and we agree and those who don’t are on the wrong side of the British Public”. In fact people and organisations have joined to criticise against the Governments plans but they have continued to ignore the outcry by the people about the harm and damage of these cuts most notably the Churches have spoken out against the Governments Welfare Reforms describing them as “unjust”. As we mentioned earlier the government have not implemented reforms they are cuts, they are immoral, unethical and inhumane, hitting the already struggling people that are trying to “make ends meet”. This is not a Welfare Reform for the better as the Government would like the people to believe, it’s about cuts. These cuts are disproportionately unfair to disabled people and other disadvantaged groups in our society and will further exclude groups from the mainstream of society. With these cuts we are most likely to see an increase in disabled people moving from their homes into segregated institutions and with the increase in mortality and homelessness, there will be a dependency on charities, handouts and/or the goodwill of others. The Fair Society report (Dr Simon Duffy, 2013) states that “poverty will deepen for many, and overall income inequality will increase” (p.31). Also that there will be a “lack of care and support for people with moderate needs which will increase the number of crisis and the cost of support for the smaller number of people eligible for support” (p.31).

The practices of these cuts resemble that of the Poor Law whereby people that needed assistance from the state had to go into a workhouse to get it. Today we may not have Workhouses but the rules and conditions, of the reforms mirrors the practices of the Poor Law. Like with the Welfare Reforms its aim is to reduce the Government’s expenditure. This was the exact intention of the Poor Law to reduce spending on Poor people. Clearly this failed to solve the state problems!

History has taught society that by reducing the income of disabled people and other disadvantage groups will create further problems and will not solve the current economic crisis.

It is not acceptable that austerity measures are targeted at disabled people, disadvantaged groups and vital services which these groups depend upon, in order to solve the States problems. And for many disabled people to have any kind of opportunity, justice and rights, it is the responsibility of the State to recognise and acknowledge a Welfare System as a human right for everyone as it was originally intended – from cradle-to-grave!

 

Thank you.

 

Reference

  • Dr Simon Duffy (2013) A fair society? How the cuts target disabled people. The Centre for Welfare Reform, London

 

 

 

 

Sisters in the media: Maria and Zara

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Sisters of Frida have all been so busy since our last meeting in London!

mariaMaria Zedda has been interviewed by Astute Radio – Disabled is not Unabled

Maria Grazia Zedda who shares her expertise and views about how disabled people can turn their challenges into triumphs and how disabled workers can result in happy, profitable businesses (and as a disabled woman)

listen to it here mp3

Zara Todd has been on Channel 4 No Go Britain again – Wheelchair sat nav – a move in the right direction?

 

Way to go Sisters!

 

Update on Anne Pridmore’s fight for the Independent Living Fund

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Channel 4 news Katie Razzall had the piece  all ready for broadcast that eventful evening on the 13th March where Anne was at court with the other 5 people on behalf of thousands of others -  challenging the Government’s decision to scrap the Independent Living Fund from 2015 and devolve it to local authorities instead. However, in an ironic twist, news broke that a new Pope was chosen and all news coverage focused on that instead.

It was published online instead

Anne told Channel 4 News: “It’s like the sword of Damocles hanging over my shoulder because it’s always on your mind: what’s going to happen? Many of us feel the same way. If the local authority won’t take over the funding to pay for the bit the ILF have been paying, I see the only option is being put into an old people’s home. I’ve lived in this house for 47 years and didn’t expect to have to campaign to stay in my own home at my age.”

Mrs Pridmore has met representatives from her local council to ask what their plans are.

“I pressed them but they were very cagey, and talked about other ways of providing care which doesn’t involve “hands on” care. I believe they are probably referring to things like people having to use incontinence pads. They are not doing that yet in my local authority but I know that people who have to use these in other areas.”

Lawyers for the six told us they are challenging the Government decision on two grounds.

They say the Government is breaching the UN Convention on the Rights of People with Disabilities, to which it is a signatory and which includes promises to promote independent living.

They also argue the consultation process carried out before the scheme was axed was “unlawful” because it didn’t provide adequate information on the differences between the fund and the local authority assessment and provision. They also say there hasn’t been proper assessment of the impact of the change on disabled people’s ability to live and work indepdently.

Read the rest on the Channel 4 website.
Read also her story on the DPAC website.

News from sisters

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Firstly, we are happy for Maria Zedda of Wideaware to announce the launch that Transport Minister Norman Baker MP will today launch an improved website designed with the help of disabled people for rail passengers who may need assistance when travelling by rail.

rail accessibility

rail accessibility

The Association of Train Operating Companies (ATOC) has expanded and renamed its successful Rail Travel Made Easy website, adding more information and advice on rail travel for the increasing numbers of disabled people now travelling by train.

The revamped site, now called Rail Accessibility – Rail Travel Made Easy, will be launched at a meeting of the National Rail Accessibility Group in Parliament this afternoon.

Maria Zedda, Managing Director of Wideaware said: “This has been a very exciting project to be involved in. The Rail Accessibility – Rail Travel Made Easy website will deliver really useful information to disabled and older passengers.”

And to announce the publication of Armineh Soorenian’s  Housing and transport: access issues for disabled international students in British universities.

This article explores two disabled people’s ‘Seven Needs’ to independent living, those of ‘housing’ and ‘transport’ issues, in relation to disabled international students in British universities. Firstly, students’ living arrangements, including issues related to the suitability of university accommodation to their disability-related needs, have been identified. Secondly, the choice and accessibility of transport used is examined. A range of barriers that this group of students encounter based on their double or multiple identities as ‘disabled’, ‘international’ and sometimes ‘mature’ or ‘postgraduate’ students has thus been identified and discussed. The article highlights the barriers that are reinforced and exacerbated by the interplay of students’ different identities, proposing ways of removing these difficulties.

anne pridmoreLastly but not least we wish all the best to Anne Pridmore as one of the six taking on the DWP against the closure of the Independent Living Fund in the High Court in London and we urge everyone who can make it to join the virgil on Wednesaday and Thursday. Help by writing to your MP – here’s the template letter.

We are with you in spirit, Sister, if not in body!

UK CEDAW Working Group submission to CRPD general discussion on women and girls with disabilities

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The Committee on the Rights of Persons with Disabilities has announced that it will be holding a half day of general discussion on women and girls with disabilities at its upcoming session in April 2013. The discussion will take place on 17 April from 12 – 6pm. The Committee welcomes written submissions from civil society, particularly from DPOs, on strengthening the protection of human rights of women and girls with disabilities. Submissions should not exceed 10 pages and should be sent in word format no later than 17 February 2013 to crpd@ohchr.org. For further details please visit the Committee’s website where information is available in English, French, Spanish, Russian, Arabic and Chinese.

(the deadline has been extended to 31st March)

Below is a submission from the UK CEDAW Working Group on behalf of Sisters of Frida for the CRPD general discussion on women and girls with disabilities on April 17th 2013. (with thanks to Charlotte Gage for getting it out in time)

Introduction

Most States lack a specific and comprehensive law, policy or programme on persons with disabilities in general or on women with disabilities in particular. States that do have a disability law often do not specifically address the rights of women with disabilities. States may also have a specific law on violence against women that generally provides remedies for all women, within a non-discriminatory framework, but unfortunately, such laws are not effectively implemented in respect of women with disabilities. Very few States have established dedicated institutional mechanisms, programmes or strategies such as national committees or councils on women and disabilities.The United Kingdom (UK) is no exception.

The UK says that it uses the social model of disability which recognises that disability arises from society’s negative responses to us, inaccessible environments, discrimination and disablism. However, the UK definition of disability is not compliant with the CRPD. Disability is not an inevitable consequence of impairments and equality is possible and can be achieved through removing the barriers to social inclusion. This report demonstrates that the statistics fail to recognise that disabled people are not a homogenous group and include disabled women as well as men. This is partly due to a general lack of data disaggregated from a gender and disability perspective. Disabled women’s needs are often excluded in the mainstream Disability Movement as well as the Women’s Movement, and wider government policy, which explains the lack of both qualitative and quantitative data specifically about disabled women in all the areas discussed below. Disabled women often remain invisible in mainstream legislation/policy for women and disabled women’s issues are still under-researched, and their concerns are overlooked….

Download the whole report (MS Word doc):

 UK CEDAW Working Group submission_disabled women_2013

note: We would like to acknowledge contributions to this report from Armineh Soorenian, Debbie Jolly, Eleanor Firman, Ellen Clifford, and Eleanor Lisney

Sisters of Frida’s Anne Pridmore takes on Government

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anne pridmore

Anne Pridmore

We at Sisters of Frida are proud to support Ann Pridmore, from Sisters of Frida, a disabled rights campaigner as she prepares for one of her toughest fights in taking on the Government in court.

Anne will be one of six disabled people from across England challenging the decision to scrap the independent living fund (ILF).

 Like thousands of people, Anne, 73, who has cerebral palsy, gets about half of her benefits directly from the Department of Work and Pensions (DWP) through the ILF.

The cash can be used for such things as hiring an assistant and getting laundry and shopping done – which are not provided by councils through social services care packages.

The fund has already closed to new members and, from 2015, the money will go to councils instead.

It will not be ring-fenced, meaning local authorities can do what they want with it.

Anne, of Market Harborough, said she feared many disabled people would have to rely on relatives or charities in order to continue living independently. Her challenge will be heard at the High Court in London over two days from March 13.

Anne, who has been campaigning for disabled people’s rights for 27 years, said:

“The Government always attacks the weakest members of society. There are about 18,500 people who are at risk of losing their funding and it’s a big step backwards.

“This Government has set back disabled rights 25 years since it has been in power, with people being taken off incapacity benefits and now this.

“It’s undoing all the work I’ve been doing.

“I think this fight is going to be a hard one.”

Anne said while she felt too old to be taking a Government department to court, she was doing it on behalf of younger people with disabilities who could benefit from the ILF in the future.

The six disabled people will ask the courts to declare that the public consultation held last year was unlawful and that the department had failed to explain why the only option it offered in its consultation was to close the fund.

They will also argue the Government breached the Equality Act by failing to assess the impact of the closure on disabled people.

Read more: http://www.thisisleicestershire.co.uk/Anne-takes-Government/story-18134803-detail/story.html#axzz2LpItqwMH

Michelle Daley interviewed on disability and ethnicity on Vox Africa

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We are very proud that one of the Sisters of Frida, Michelle Daley, was interviewed on STM (SHoot the Messenger) Vox Africa.

She spoke on being a disabled black woman in her community.

Michelle Daley

Michelle Daley (click on image for video)

We apologise for the lack of a transcript. If anybody can help with that please let us know.

UN raises important questions about women’s rights in the UK – what response will they get from the Government?

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Sisters of Frida have been involved in the CEDAW working group and Armineh Soorenian has contributed to the report on disabled women.

From The Women Resource

The UN CEDAW Committee have sent their first list of issues and questions to the UK Government ahead of their full examination in July 2013.

This is a response to the Government’s report submitted in June 2011 and has also been heavily influenced by the suggested lists of issues and questions sent by women’s organisations and others, including the Equality and Human Rights Commission (EHRC), and by the presentations given by a delegation of women from the UK at the Committee’s Pre-session Working Group meeting on October 22nd.

It is very encouraging to see this connection and to feel that engagement in these high-level processes is able to influence the outcomes and can lead to the Government being held to account on the issues that we know affect women in the UK every day. We hope that ultimately this will lead to strong recommendations from the UN next year and to the Government changing policy and ensuring that women’s rights are fully realised here.

Questions relating specifically to disabled women:

On the media representation of women (Article 5):
Provide information on measures taken to project a positive image of women in the media, in particular ethnic and minority women, elderly women and women with disabilities.

On social and economic benefits (Article 13):

  • Provide information about actions envisaged to assess the impact of the introduction of the Universal Credit on women’s economic independence.
  • Indicate the impact of the changes in the welfare system and the pension reform (2008) on older women, women with disabilities and ethnic minorities.

Read the rest of the article at The Women Resource site