Svetlana Kotova with others from the event

Svetlana went to speak about the CRPD Article 6 invited by the Polish Disability Forum and their partners on Sisters of Frida’s behalf on 13th July. This was part of the project “Implementation of the UN Convention on Rights of Disabled Persons – a common cause” . This is co-funded from the EU’s European Social Fund.

Below is her presentation.

Disabled women and CRPD

Disabled women are one of the most marginalised groups in the world.
According to UN they are

• 3 times less likely to be literate compared to disabled men
• Twice less likely to be in employment. When in jobs, they are much more likely to do low paid work
• Disabled women are much more likely to be victims of violence and often have to endure it for longer, because appropriate support is not there.
• 50% of disabled women have experienced domestic abuse compared with 25% of non-disabled women.
• Disabled women are twice as likely to be assaulted or raped as non-disabled women.

Both men and women with a limiting illness or disabilities are more likely to experience intimate partner violence.

• A study of women who access mental health services identified between 50% and 60% had experienced domestic violence, and up to 20% were currently being abused
• Disabled women are less likely to have access to health services, including family planning and contraception advice. Some are subjected to invasive procedures such as sterilisation or abortions without their consent.
• Disabled women are overrepresented among those parents whose children are being removed.

There are many reasons for this appalling situation disabled women face. Those reasons are complex. Disabled women were largely overlooked by feminist movement and although disability rights movement was largely gender neutral, it until recently failed to address the specific needs of disabled women. That’s why the CRPD is so important for disabled women.

Before moving to talk about the convention, I want to tell you a couple of stories of disabled women.

Aisha
Aisha is deaf. She lives with her husband and their 2 children. Her husband works and she depends on him financially. He also is the only adult person who helps her to be in touch with the hearing world. She also relies on the help from her children, but sometimes it is just not appropriate to ask them to interpret. Whenever she has medical appointments or just needs to go to her children’s school or shops her husband or children have to interpret for her. From very beginning of their marriage he was abusive to her. He often hit her and sometimes raped her. She tried to talk to her parents about this, but they told her to be kind to him, as in their view it is worse to be alone, than to be with him. Friends told her to call the police next time he beats her, but she is afraid. She knows there isn’t anywhere she can go to, she depends on him totally. Police are not likely to believe her and what will happen to her if he leaves?
Mary
Mary has learning difficulties. She lives in a home with other people with learning difficulties. Mary fell in love, had sex and became pregnant. She was told about sexuality or given advice about contraception she did not realise what was happening to her. Her parents wanted her to have an abortion, but could not achieve this, as Mary did not agree. While she was pregnant nobody told her what would happen at birth or spoken to her about looking after her child. Mary had a very traumatic experience at birth and after that her daughter was removed.

CRPD
UN CRPD is an international instrument that protects both of those women and all other disabled women in the world.

The Convention recognises equality between women and men as one of its key principles. When it was developed, it has been decided to take a twin track approach, meaning that there is a specific article about disabled women along with specific mentions of gender in other articles. The convention seeks to address some of the specific areas where disabled women are most discriminated against.
Article 6, a specific article about disabled women recognises that they face multiple discrimination and requires states to take all appropriate measures to ensure disabled women can enjoy their human rights on the equal basis with others. Art. 6 is a cross cutting article. It therefore should be applied to all the rights in the convention.

Art 6 has 2 parts.

First it is about multiple discrimination disabled women face. Many of us have multiple identities and we are impacted by discrimination cumulatively as disabled women. Multiple discrimination is discrimination based on more than one status. Its effects can combine or grounds can interlink. Disabled women’s situation is often influenced by the fact of both disability and gender. Other factors such as race and ethnicity or economic situation can also have a huge impact.
Multiple discrimination can happen in private and public sphere and the states have a duty to protect in both.
Discrimination disabled women face can take a form of direct discrimination, when disabled women are specifically excluded because of their gender and disability. Indirect discrimination – when policies seem neutral, but have disproportionate effect on disabled women. In the UK for example we argued that disabled women suffered the most from the recent austerity measures.
A denial of reasonable accommodation is also discriminatory. When disabled women for example cannot access breast cancer screening programmes because there is no equipment to accommodate their access needs it can be seen as a denial of reasonable adjustments.
It is important therefore to recognise that violence against disabled women, lack of access to health or maternity services, socio-economic situation of disabled women or lack of their participation and non-existence of their voices in political debate are all caused by multiple discrimination they face. It is also important to remember that disabled women are a very diverse group and there is a great inequality even within this group.
Do we hear the voices of women from ethnic minority backgrounds?
Do we hear the voices of women with learning difficulties?
Do we know the experiences of LGBT disabled women?

Development, advancement and empowerment

The second part of article 6 talks about the need to take all appropriate measures to secure development, advancement and empowerment of disabled women.
Development means giving women better chance in life by developing their skills and knowledge, improving education, economic situation, health, political participation etc. Advancement requires ensuring situation constantly improves.
Empowerment moves women from subjects of pity to right holders and decision makers. In order to be empowered women need to know about their rights and often need a chance to support each other and help each other have a voice. Empowerment is not only about taking part in political life, for many it is about standing up for themselves, being heard within their families, feeling confident and able to make choices. Empowerment is about feeling you are of an equal worth with others and you are making equal contribution in your own way.

Obligations

In short state’s obligations towards disabled women include the following:
Respect – not to take measures that undermine the development, advancement and empowerment of disabled women and girls. For example not to Introduce policies that may have a detrimental impact on disabled women or weaken protections disabled women already had.
Protect –ensure private bodies do not infringe the rights
For example passing the laws that protect disabled women against violence.
Obligation to protect requires states to prevent, investigate, provide redress and protect the victims. In a context of violence, the states need to look at the positive measures they are taking to prevent it from happening. Are there effective ways for reporting it? Many of us need support to do this. Will those reports be investigated and will perpetrators be punished. Most importantly, will a disabled women who experienced violence get support to deal with it and move on. For many this support should include help to live independently in the community. Many of us are afraid to flee violent relationships, because we depend on the perpetrators not only financially, but also for support with our care needs.
Fulfil – To adopt measures needed to secure the development, advancement and empowerment. This requires specific resources and actions to advance the equality for disabled women.

It is really important to ensure there is enough information to assess the situation of disabled women. That’s why the collection of data is vital. The data that is collected about disabled people should be desegregated by gender. On the other hand, the data about women should include the data about disabled women specifically.
When CRPD was developed disabled people, including disabled women played a key part in the process. Nothing about us without us was truly acted upon. And CRPD recognises that disabled people, including disabled women should be involved in the process of implementation of the Convention and it’s monitoring.

It is important to remember that obligations in art 6 are immediately applicable, states cannot rely on progressive realisation.

Now I would like to focus on some specific areas of particular concern. Those are:

• Violence against disabled women and girls,
• Sexuality, reproductive rights and motherhood
• And socio-economic situation

As I said at the beginning we are more likely to be victims of violence. Disabled women are likely to endure it for longer and have very little opportunities to escape. Violence happens because of dependency generally, but dependency of disabled women can be much greater. Perpetrator is often our carer, and sometimes the only carer. We feel it is much harder for us to make it alone. Who would look after us if we lose our main carer? Many of us are afraid to lose children. The feeling of being trapped is very strong and can be caused by many factors which link together.
We are often targeted because of stereotypes, limited mobility, social isolation, economic dependency, difficulties with communication ect.
Our abusers can be family members, support workers, staff at institutions. We often are made to feel grateful for all the help they give us, so we feel powerless to stand up to them and complain. General public largely is sorry for them for the hard life they have looking after a disabled person, do they care about us? probably not. We are often not believed. How those who look after us could abuse us? And they can always find justifications. Many parents for example who want their daughters sterilised justify this as a way to protect them.
Many of us don’t even know that what we endure is not normal. We don’t always know where to go for help and what to say to get help. Some of us need communication support to ask for help, and often rely on perpetrators or other family members to provide it.

Those who do report violence and try to flee often find themselves in a situation where there is nowhere to go. Many of us have to choose either getting some support in an abusive relationship or not getting support for our disability at all.

Sexuality, reproductive rights and motherhood
When I was young, I was often told that people like me should not have children. It is often assumed that disabled women either cannot or should not be mothers. They should not have sex and should not know about it.
Many of us never get sex education. We do not always get family planning advice. Sometimes our families or professionals looking after us get advice on our behalf and make us undergo invasive treatments, such as abortions or sterilisations. We often can’t access reproductive health services or screening programmes for females.
Those of us who have children are constantly afraid to do something wrong. We cannot ask for help because our children could be taken away.
On one hand we are discriminated and marginalised like all other women are, but on the other, we also have to battle the assumptions that we cannot fulfil a female gender role.
Socio-economic situation
When I apply for jobs I know the employers would firstly be reluctant to offer a job to me because I am disabled, but also because I AM A WOMAN.
Disability causes poverty and on the other hand poverty leads too much greater chance of disability.
Disabled women are less likely to be in work and if they are they earn less. We are disproportionately more likely to be a part of informal economy.
This is why we have to rely on services and the support from social security system. Disabled women are more likely to rely on services and would be disproportionately affected by austerity measures.

Gender and disability mainstreaming

One way to ensure the specific needs of disabled women are met in the policymaking is to implement gender and disability mainstreaming. It is important to analyse the policies and assess their possible impact on disabled women. Disabled women should benefits from programmes targeted at women or at disabled people in general.
Disabled women are women and like all other women they are also protected by other international human rights instruments, CEDAW for example. Disabled women should enjoy all the rights guaranteed by CEDAW like all other women and as part of disability mainstreaming, disabled women should be considered when states monitor the implementation of CEDAW.

And finally, I would like to reiterate this point again. It is important to recognise that we all are different our different voices need to be heard and different experiences should be valued and taken into account.

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Svetlana Kotova is one of the founding members of Sisters of Frida. She has conducted training on the CRPD with Disability Lib and is the Policy and Campaigns Advisor at Sense. She is also the proud mother of a toddler daughter.

For information of what the Commission on the Status of Women (CSW) is, check out our resource on the CSW.

Sisters of Frida will be at the CSW60 – the sixtieth session of the Commission on the Status of Women.

We are going as part of the CSW Alliance and NAWO.

See the NAWO’s Report PDF on Sustainable Development Goals (SDGs) European Indicators (28th Jan 2016)

Many thanks to Abia for sharing this about herself to us.

Abia Akram

Abia Akram is studying for her Masters degree in England. Not an easy job in itself, especially when you are working 4000 miles away from your home in Pakistan.

But then Abia is used to travelling the world – not for a quick holiday or to see the sights – Abia has been attending conferences, meeting with international organisations, reviewing proposals, all to ensure that the voices of persons with disabilities, like herself, are heard and recognised, at school, work, and in the international arena.

Abia was born with the genetic form of rickets, a rare disease that causes the softening and weakening of bones, which left her physically disabled.

She began her education at an education centre for persons with disabilities before attending a mainstream school. But it was at her new school that the “special” dispensations her teachers afforded her because of her disability caused Abia to realise that teachers and students needed greater training on working with children with disabilities.

“It was difficult to work in the mainstream school system because of the attitude and behaviour of the teachers there,” she said. “If I did not complete my assignments they would say, “It’s okay, we can manage”. At the time I was not a wheelchair user but they would discourage you from using one if you needed it as they believed they could cope with getting you to your classes. They would use the word ‘special’ for persons with disabilities.

“But persons with disabilities are not ‘special’. They are human beings and need to be treated equally. Children with disabilities who need to use a wheelchair should be allowed to use it as it gives them their independence to make their own way. They considered persons with disabilities as “challenged” but it’s just a different lifestyle.”

Abia began talking to people at her school to change their attitudes, and thanks to the joint efforts of disabled people’s organisations and international organisations who trained teachers in schools, things have begun to change. But for Abia it highlighted the need for systematic training of teachers.

“The fear is that a child with a disability will not attend school because of the attitudes he/she will face there. Persons with disabilities do need extra facilities at schools to enable them to use the building, but they should not be considered “special” because of this, they are like everyone else.”

After completing her education, Abia worked at several organisations including Handicap International, and started the Ageing and Disability Task Force – a coalition of 12 different organisations working to mainstream ageing and disability concerns across all humanitarian agencies. She is currently a Project Manager at Independent Living Centre in Pakistan; Chair of the National Forum of Women with Disabilities Pakistan; Women’s Co-ordinator at Disabled People International, Asia-Pacific; and member of the Commonwealth Young Disabled People’s Forum…as well as studying for her Masters in International Development and Gender.

Through her work she saw the stark contrast between her home life where her parents were encouraging and supportive, to those of other women with disabilities who are forced to stay in the home without social interaction.

“In the first place a woman in a developing country will already face a lot of challenges because of her gender. For women with disabilities they can face double, even triple the discrimination than men with disabilities are confronted with. For some there are no employment opportunities, they are not allowed to go out and contribute to society, to marry, to have families.

“They are hidden away and some families even spend huge amounts of money trying to “cure” the disability.

“From my own experience I faced discrimination when I went to speak to people about persons with disabilities, because I am a woman, and because they did not see that the rights of women with disabilities were as important as the rights of men with disabilities.”

Abia has been working to help women with disabilities to raise their voices by inviting them to peer-counselling – meetings where they can share their own experiences with others – to empower them, to consolidate and expand peer support groups, and to sensitise people to the positive aspects of integrating women with disabilities into society. In some cases the meetings were also the first opportunity that women with disabilities had to leave their homes.

Abia has also been campaigning amongst international organisations and the private sector for persons with disabilities to be included as staff members, and for their perspectives, and especially that of women with disabilities, to be part of their agendas, policies and budgets.

“Persons with disabilities need to be included in the decision-making process of these organisations and at the local decision making level, so they can give their input as equals and as events unfold, rather than at the final stages,” she said.

“Conferences and international events take an important role. If you include the perspectives of women with disabilities in these agendas, then other international organisations and governments will take note.

“After the earthquake in Pakistan in 2011 Handicap International, who I was working for at the time, reviewed all the proposals for funding coming in from organisations seeking to help. Persons with disabilities were not included in any of the proposals and we went back to the organisations to ask them to review their programmes from a disability perspective.”

Abia said they are now working with organisations to produce guidelines to train their staff on how to include a persons with disabilities perspective into their agendas and proposals – from the planning stages to local implementation.

But the difficulty of including these perspectives in the agendas of governments and global organisations is exacerbated by the lack of data and information on persons with disabilities living around the world, she added.

That is where meetings, such as those organised by the Commonwealth Secretariat this week in London, bringing together 42 participants including young persons with disabilities from across the Commonwealth, can fill the information gaps, she said.

“This kind of conference is really very important because some countries are still struggling at the grass-roots level to plan and implement the changes that will make a difference to the lives of persons with disabilities. Through these conferences we can share the experiences of those working at the grass-roots level and decision-making bodies and can also work closely with young and dynamic persons with disabilities.”

source: Commonwealth Secretariat